Mesothelioma Resources
Mesothelioma Resources for Patients, Families and Caregivers
Individuals diagnosed with Mesothelioma often need reliable resources to help manage their disease. During such a challenging time, having access to the right support can ease some of the stress that comes with a difficult diagnosis.
Explore books, events, support groups, and specialized services below that raise awareness of this rare disease and provide guidance for patients, families, and caregivers.
Mesothelioma Books
If you're looking to learn more about mesothelioma and available treatments, we've put together a list of recommended books. These titles, available on Amazon, cover mesothelioma and cancer more broadly and are recognized as some of the most trusted and helpful resources available.
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Malignant Mesothelioma (Hardcover)Edited by internationally recognized experts, Malignant Mesothelioma is a comprehensive resource that brings together the science, pathology, clinical management, and treatment of the disease in one book. It incorporates the latest research and developments, covering topics such as carcinogenesis, epidemiology, diagnostics, multimodal therapies, and molecular genetics. The book also explores emerging treatments like gene therapy, immunotherapy, and vaccination strategies, along with the legal and economic implications of mesothelioma. |
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100 Questions & Answers About Mesothelioma, Second Edition (Paperback)The only book that presents both the doctor’s and patient’s perspectives, offering practical answers to your questions about treatment options, support resources, legal rights, and more. |
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A Cancer Battle Plan: Six Strategies for Beating Cancer, from a Recovered 'Hopeless Case'This updated edition of A Cancer Battle Plan shares the comprehensive nutritional approach one woman used to overcome cancer and offers a valuable program for anyone seeking recovery or long-term wellness. |
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Beating Cancer with Nutrition: Clinically proven and Easy to Follow Strategies to Dramatically Improve Quality and Quantity of LifeDr. Patrick Quillan draws on his experience helping hundreds of cancer patients through a comprehensive nutrition program focused on diet and supplements. The book explores cancer-fighting vegetables and the therapeutic value of specific foods, vitamins, and minerals. In addition to nutritional guidance, he examines conventional treatments such as chemotherapy and surgery, as well as alternative approaches like macrobiotics, herbal remedies, and vitamin therapies. He also addresses key contributing factors, including drug use, tobacco, and immune system dysfunctions. |
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Malignant Pleural Mesothelioma (Hardcover)This comprehensive, full-color reference on malignant pleural mesothelioma offers insights for healthcare professionals, scientists, and for those being treated for the disease. Edited by Kenneth O'Byrne and Valerie Rusch, the book covers epidemiology, diagnosis, treatment options, and palliative care, with contributions from international experts. It also explores the molecular biology behind the disease, potential future therapies, and the legal issues surrounding mesothelioma cases. |
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They Said Months. I Chose Years! (paperback)In October 2001, James O'Connor was diagnosed with mesothelioma and given less than a year to live. Surgery wasn’t an option due to the tumor’s location, and chemotherapy offered limited benefit. Advised to take a final vacation and begin hospice care, James chose a different path. With the help of healthcare professionals, he developed a holistic regimen that included over 100 daily supplements, dietary changes, mind-body practices, and unwavering discipline. Over six years later, James remained alive, active, and committed to his wellness routine. |
Mesothelioma Events
There are organizations around the country working to raise awareness of Mesothelioma. Several groups arrange events nationwide to advocate for mesothelioma patients and their families. These events create a sense of community for those affected and raise money for medical research.
- September 2025: Mesothelioma Awareness Month
- September 26, 2025: National Mesothelioma Awareness Day (MAD)
- October 25–26, 2025: Mesothelioma Applied Research Foundation (MARF) Symposium
Mesothelioma Support Groups and Services
Whether you're a patient, caregiver, or family member, cancer support groups can offer comfort, connection, and understanding throughout your journey. The following in-person and online support services, can provide a space to share experiences, ask questions, and find encouragement from others facing similar challenges.
- American Cancer Society (ACS) Patient Programs and Services offers resources to programs and services aimed to help patients during and after their cancer treatment.
- CancerCare is a support group led by licensed oncology social workers offering guidance and community outreach for mesothelioma cancer patients and their loved ones through message boards, in person or via video-conferencing.
- Cancer Support Community (CSC) is a support helpline led by experienced navigators and resource specialists who help guide cancer patients through their diagnosis. Staff will connect individuals with the right counseling and support groups and provide resources for the best treatment and financial options.
- Look Good Feel Better public service program offers hands-on instruction for individuals who have gone through devastating appearance-related side-effects following chemotherapy, radiation, and other cancer treatments.
- Mesothelioma Applied Research Foundation (MARF) offers support for patients, family and caregivers through online platforms such as Facebook and Zoom. They also hold in-person conferences for those affected by Mesothelioma.
- Smart Patients is an online support group offering resources and information regarding the latest medical research and scientific developments related to mesothelioma diagnoses. Group members can share personal experiences and medical insight.
Caregiver and Patient Resources
Facing a mesothelioma diagnosis can be overwhelming. Resources for both patients and caregivers provide vital information, guidance, and emotional support to help navigate the challenges of living with this disease. With proper planning and the right support, patients and caregivers can feel more prepared and confident as they move through the treatment process together.
Legal Help for Financial Relief
Many mesothelioma cases are linked to asbestos exposure in the workplace, often due to negligence by employers and manufacturers. Because of this, victims and their families can seek legal help to pursue mesothelioma compensation for medical bills, lost wages, and pain and suffering. Guidance from experienced mesothelioma lawyers can ease the financial burden and ensure access to the compensation victims deserve. They can help with filing:
Health Insurance and Cancer Care
Understanding your health insurance coverage can help you make informed decisions and avoid unexpected costs during mesothelioma treatment. Medical care can be expensive, and coverage often depends on your specific plan. Patients should review both primary insurance and any additional coverage options such as Medicare, Medicaid, VA benefits, or Social Security.
- Primary Insurance: Review your primary health insurance plan to understand coverage for mesothelioma cancer treatments, including hospital care, specialists, and medications. Be sure to check for out-of-pocket costs, pre-authorization requirements, and in-network versus out-of-network options.
- Supplemental Programs: Explore supplemental programs like Medicare, Medicaid, VA benefits, and Social Security to help cover additional care costs. These programs may offer support for patients without sufficient primary insurance or those needing long-term care assistance.
When in doubt, consult an insurance representative or trusted family member to help navigate the details.
Long-term Care
For mesothelioma patients needing ongoing support, long-term care services can provide daily assistance and help maintain quality of life over time. How to start exploring long-term care options:
- Understand care needs: Talk to your doctor to determine the type and level of care required.
- Research care options: Learn about available services like in-home care, assisted living, or hospice.
- Review Insurance and Costs: Check what’s covered by insurance, Medicare/Medicaid, or VA benefits, and estimate any out-of-pocket costs.
- Compare providers: Look into local facilities or programs, read reviews, and evaluate reputations.
- Get help from experts: Connect with a hospital social worker or care coordinator for personalized guidance.
Extended Stay Housing
When treatment takes you far from home, extended stay housing options offer a comfortable, affordable place to stay for mesothelioma patients and their families. Some options to consider include:
Patient Transportation
Getting to and from treatment shouldn't add extra stress. Transportation services can help make travel easier and more manageable for mesothelioma patients. Some options to consider include:
End-of-Life Plan
Preparing for end-stages of a terminal mesothelioma diagnosis can alleviate added stress and bring peace of mind to patients and caregivers when facing difficult decisions. Open communication with mesothelioma patients regarding care options, quality of life, financial arrangements, and post-life services can help caregivers and family members feel confident that their loved one’s wishes are met.
End-of-Life documents for caregivers and family members to discuss with patients:
- Do Not Resuscitate (DNR)
- Health Care Power of Attorney
- HIPAA Release
- Financial Power of Attorney
- Letter of Intent
- Living Trust
- Living Will
- Last Will and Testament
Request a Free Case Evaluation
Request a free case evaluation now if you or someone you love has been diagnosed with mesothelioma. The evaluation will cost you nothing. Our lawyers will travel to visit you at your convenience or conference call with you over the phone. We understand how difficult a time this is for you and will assist in any way that we can. You can also call us toll-free at 1-800-336-0086 at any time.
